To Protect Newborn Genetic Privacy Rights

Summary

The bill mandates that hospitals obtain a separate, written, informed consent from a parent or guardian before performing any newborn genetic screening, keeping the blood spots, or sharing the test results. Parents may refuse the state program or opt for private testing, and the law limits how long samples can be stored and how they may be used. It aims to protect infants’ genetic privacy and give families clear control over their child’s genetic information.

AI-generated summary — may be incomplete or inaccurate. Verify against the official bill text.

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