Recognizing the significant and often overlooked behavioral health needs experienced by individuals and families affected by rare diseases, and for other purposes.

Summary

The resolution acknowledges that people with rare diseases and their caregivers often experience anxiety, depression, trauma‑related symptoms, and caregiver burnout, and that access to mental‑health care is limited. It calls on the Department of Health and Human Services, NIH, CMS and other federal bodies to prioritize behavioral health in rare‑disease programs, expand peer‑support, improve cultural competency, and address workforce and payment barriers. The measure does not create new programs but urges existing agencies, payors, and clinicians to take action.

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