Reported by CommitteeFiled Apr 30, 2026
Sponsor: Becky Carney (D)
Latest Action
Reptd Fav
May 12, 2026
Summary
HB 1166 changes how the Rare Disease Advisory Council is composed, appoints members, sets term limits, and requires quarterly meetings. It shifts administrative oversight to the Department of Health and Human Services and appropriates money for the council’s operating costs. The goal is to improve coordination, awareness, and policy advice on rare diseases across the state.
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