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HB 1166·NC·house

Reorganize and Fund Rare Disease Advisory Council.

Reported by CommitteeFiled Apr 30, 2026
Sponsor: Becky Carney (D)
Latest Action

Reptd Fav

May 12, 2026

Summary

HB 1166 changes how the Rare Disease Advisory Council is composed, appoints members, sets term limits, and requires quarterly meetings. It shifts administrative oversight to the Department of Health and Human Services and appropriates money for the council’s operating costs. The goal is to improve coordination, awareness, and policy advice on rare diseases across the state.

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