Creates provisions relating to individualized care plans for children with rare or medically complex conditions

Summary

The bill would require a written, physician‑approved plan for any child under 18 with a rare or medically complex disease. Caregivers, doctors, hospitals and emergency services must create, review annually or after hospitalization, and update the plan, and report any serious departures from it. The aim is to improve emergency treatment and prevent avoidable harm.

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