Floor Vote ScheduledFiled May 19, 2025
Sponsor: Rep. DeGette, Diana [D-CO-1] (D)
Latest Action
Motion to reconsider laid on the table Agreed to without objection.
Jul 20, 2026
Summary
The bill amends the Public Health Service Act to require the NIH director to run a coordinated program of research, training, and investigation focused on Down syndrome. It targets people with Down syndrome, their families, and the scientific community by expanding studies, clinical trials, and biomarker work across the lifespan. The law also mandates stakeholder input and biennial reporting to Congress.
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