Public Act . . . . . . . . . 104-0843
Summary
The bill changes the Genetic and Metabolic Diseases Advisory Committee to the Universal Newborn Screening Advisory Committee and gives it quarterly meetings, review duties, and reporting obligations. It requires all Illinois newborns to be screened for a set of genetic, metabolic and congenital conditions, establishes a $118 base fee and a fund for screening and follow‑up, and outlines how the Department of Public Health must add new conditions. The measure also creates a registry, supplies treatment formulas, and sets timelines for reviewing federal screening updates.
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